The Delayed Diagnosis: Now What?
Even though the MRI has come a long way in helping to diagnose MS more efficiently, it's not uncommon to wait months, even years, for a definite diagnosis. That's because not everyone's symptoms and signs fall within the parameters of the McDonald criteria. Investigators are continuing their search for a definitive test for MS. Until one is developed, however, evidence of both multiple attacks and CNS lesions must be found before a doctor can make a definite diagnosis.
Fact
For 10 to 15 percent of those in the diagnosis process, a definite diagnosis is not possible. Over time, with periodic examinations and by monitoring the changes in a person's condition, diagnosis is possible in the vast majority of cases. One recent survey conducted by the NMSS and Teva Neuroscience showed that in a study of almost 2,000 people with MS, it took 37 percent six months or less to receive a definitive diagnosis of MS after their symptoms started.
Your neurologist may take a wait-and-see approach and will continue to follow up with you until it's possible to paint a better clinical picture through office visits and repeat MRIs. For some patients, the wait can be difficult. Uncertain of what is causing their symptoms, they can find the feeling of being in limbo unsettling. Rest assured, your health care professionals are just as eager to pinpoint the cause as you are, but getting an accurate diagnosis is important. You may also want to seek out a second opinion.
Alert
If you have received an uncertain diagnosis, use this time to make some lifestyle changes. Taking good care of your body right now is just as important as it is for someone who has received a definite diagnosis. Strive to live a healthier lifestyle with a nutritious diet and a regular exercise program.
You may also want to spend some time familiarizing yourself with MS by researching drug therapies, checking in with your local chapter of the NMSS, or joining a support group. Keep in mind that most services available for people with MS are also extended to those with possible MS.
When you consider the fact that people were once diagnosed with MS by being placed in a tub of hot water (based on the knowledge that heat exacerbated symptoms), it's easy to appreciate the advancements science has made in diagnosing MS. Without a single “gold standard” diagnostic test, though, MS can still be a difficult disease to pinpoint. The importance of a good physician and adequate testing (not to mention patience) cannot be stressed enough.
Since the new disease-modifying therapies have been introduced, a speedy diagnosis is considered critical, but accuracy is also imperative. New diagnostic tools are currently in the pipeline and may someday make the diagnosis of this complex disease less challenging.
