Advocacy, Education, and Information

  • Alzheimer's Association

    Offers a bounty of resources for individuals with AD, their families, and their caregivers. Operates a toll-free, 24/7 help line that provides reliable information, referrals, and support in several languages. Offers programs and services through local chapters; support groups; and online education and safety services. Sponsors MedicAlert + Alzheimer's Association Safe Return; Alzheimer's Association CareSource; and many other programs.

  • Alzheimer's Foundation of America

    National nonprofit organization providing information on Alzheimer's and other kinds of dementia, most of it geared toward caregivers rather than those with the disease. There are no local chapters; however, member organizations across the country provide services, such as consultation, education, identification bracelets, respite care, and support groups. You can search for your nearest member organization through the site.

  • About.com Alzheimer's Disease

    Provides information, resources and support for those living with Alzheimer's and their loved ones and caregivers.

  • National Hospice and Palliative Care Organization: Caring Connections

    Nonprofit membership organization that provides state-specific information and advance directive documents for end-of-life care.

  • The National Consumer Voice for Quality Long-Term Care

    Provides guidance in selecting a quality nursing home and protecting residents' rights.

  • Lewy Body Dementia Association

    The second most common degenerative dementia after Alzheimer's disease, Lewy body dementia is little known, poorly understood, and frequently misdiagnosed. This organization offers the latest information about Lewy body dementia, support groups and forums, a newsletter, a help line and updates about clinical trials focusing on Lewy body dementia's causes and potential treatments.

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